PatientsLikeMe : Baclofen Treatment Report

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Patients

Taking Baclofen
1230 Patients currently take Baclofen
145 Patients stopped taking Baclofen
morgan Sensation: Moderate Overall: Mild Cognition: moderate Vision: mild Speech: none Swallowing: none Upper limb: moderate Walking: severe See profile morgan 80mg daily since Aug 30, 1980
Dianamj Mouth/throat: mild Arms: moderate Chest: moderate Legs: moderate Type: Upper Motor Neuron See profile Dianamj 80mg daily since Jan 17, 2008
jenj Sensation: None Overall: Mild Cognition: none Vision: none Speech: none Swallowing: mild Upper limb: moderate Walking: severe See profile jenj 40 daily since Jan 01, 2006

Brand Names: Lioresal
See also: Baclofen ITP (Intrathecal Pump)

What is Baclofen? Baclofen is a muscle relaxant and antispastic agent used in the treatment of muscle spasms, cramping, and tightness. It is available in tablet, syrup form, or can be transfused by surgical insertion of a pump in the spinal cord. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

1375 patients in the community are taking or have taken Baclofen.

Reason	# Patients	Percentage of patients
Stiffness/spasticity	982	71%
Other	110	8%
Pain	55	4%
disease-related symptoms	29	2%
Fasciculations	20	1%
Slow my MS progress	12	<1%
General health	10	<1%
Mobility	8	<1%
Muscle cramping, spasms	8	<1%
Cramps	7	<1%
Fatigue	6	<1%
Treat Parkinson's	6	<1%
Don't know	6	<1%
Bladder problems	4	<1%
leg spasms	3	<1%
Support another treatment	3	<1%
Slow my ALS progress	3	<1%
Muscle twitching (fasciculations)	2	<1%
Treat my MSA	2	<1%
Trigeminal neuralgia (tic douloureux)	2	<1%
Loss of coordination/balance	1	<1%
bladder retention	1	<1%
Burning sensation, between shoulders	1	<1%
Numbness, tingling, pins & needles (paresthesia)	1	<1%
tmj	1	<1%
spastisity	1	<1%
Brain fog	1	<1%
Shocklike spasms, tingling	1	<1%
Laryngospasm	1	<1%
Peripheral neuritis (neuropathy)	1	<1%
Night-time leg spasms	1	<1%
Spasms	1	<1%
Pain, lower back	1	<1%
Stiffness	1	<1%
Numbness in my hands, arms, legs, and waist	1	<1%
Calf, feet cramps and muscle spasms	1	<1%
Muscle spasms, hands	1	<1%
Muscle Spasms, feet and toes	1	<1%
Slow my Devic's progress	1	<1%
Facial spasms	1	<1%
Sensation	1	<1%
Joint pain, stiffness	1	<1%
twitches and jerks	1	<1%
Anxiety	1	<1%
MS Hug, or girdle-band sensation, stomach/chest/thighs	1	<1%

Dosages

Based on the patients currently taking Baclofen.

Top 10 (Show all)

All (Show Top 10)

0 mg day	0 day	0 mcg none	0 mg none	0.05 mg day	0.4 day	0.5 mg day	4 mg week	1 mcg day	1 day	1.5 mg day	2 mcg day	2 mg day	2 day	2.5 mg day	3 day	4 mg day	4 day	5 mg day	5 day	8 day	9 day	0 mg none	10 mcg day	10 mg day	10 day	15 mg day	20 mcg day	20 mg day	20 day	24 mcg day	25 mg day	30 mg day	30 day	210 mg week	35 mg day	40 mcg day	40 mg day	40 day	44 mg day	45 mg day	50 mcg day	50 mg day	55 mg day	60 mg day	60 day	65 mg day	70 mcg day	70 mg day	75 mg day	80 mg day	80 day	90 mg day	90 day	100 mg day	103 mg day	110 mg day	120 mg day	130 mcg day	130 mg day	150 mg day	160 mg day	180 mg day	200 mcg day	200 mg day	210 mcg day	210 mg day	270 mg day	400 mcg day	500 mg day	600 mg day	800 mcg day	900 mcg day	1240 mcg day	1800 mg day	2550 mg day
38	62	1	33	1	1	3	1	1	2	1	1	1	2	2	4	1	1	14	1	1	1	2	1	159	1	18	3	158	4	1	10	186	1	1	1	1	117	2	1	8	1	30	1	139	1	2	1	7	6	86	4	21	1	19	1	1	22	1	1	1	5	3	1	4	1	1	1	1	1	1	1	1	1	1	1

Duration

How long current patients have been taking Baclofen or how long patients were taking Baclofen before stopping.

Currently taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
23	47	84	119	164	362

Stopped taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
20	33	23	26	14	29

Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	58	39%
Side effects too severe	54	36%
Other	31	21%
Doctor's advice	16	11%
Course of treatment ended	9	6%
Not indicated	6	4%
Expense	2	1%

Patient Reported Evaluations

Results from 85 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	30%	20
Moderate	47%	31
Slight	15%	10
None	3%	2
Can't tell	5%	3

Insomnia

Side-effects (as an overall problem)

Severe	11%	9
Moderate	16%	14
Mild	28%	24
None	45%	38

Top reported side-effects include: Fatigue, sleepiness, Muscle weakness

Summary results are based on 85 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 85)

SIONZ

Mouth/throat: none

Arms: none

Chest: none

Legs: none

See profile
by SIONZ
Aug 19, 2008

EfficacyModerate
Side-effectsNone

Other

Advice/Tips: do'nt drink alcohol.

See full evaluation
1 helpful mark

JesswithMS

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
by JesswithMS
Aug 20, 2008

EfficacyModerate
Side-effectsModerate

Stiffness/spasticity

Advice/Tips: Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor.

See full evaluation
1 helpful mark

See all evaluation results for Baclofen

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Baclofen Treatment Report