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ALS Community
Creatine Treatment Report
See More Treatments
See all treatments in the PatientsLikeMe system shared by patients just like you.
See also: Crea Pure
What is Creatine?
Creatine is an organic acid that is involved in energy use in the muscles. As a supplement, it is used by body builders to help put on muscle mass. Creatine has been trialled in ALS with no positive findings, despite initial findings in the SOD1 mouse that suggested it might be beneficial.
Read more...
See more information, including instructions, precautions, side effects, and interactions.
Reasons Taken
197 patients in the community are taking or have taken Creatine.
| Reason | # Patients | Percentage of patients |
|---|---|---|
| Slow my ALS progress | 101 | 51% |
| General health | 29 | 14% |
| Other | 26 | 13% |
| Fatigue | 7 | 3% |
| disease-related symptoms | 7 | 3% |
| Atrophy, upper body muscles | 2 | 1% |
| Stiffness/spasticity | 2 | 1% |
| Fasciculations | 2 | 1% |
| Don't know | 2 | 1% |
| Weakness (asthenia) in hand | 1 | <1% |
| Gain weight | 1 | <1% |
| Mobility | 1 | <1% |
| Support another treatment | 1 | <1% |
| 0 g Daily | 0 mg Daily | 0 Daily | 1 g Daily | 1 tbs. Daily | 1 Daily | 2 g Daily | 2 tbs. Daily | 2 tps. Daily | 2 Daily | 2.5 g Daily | 2.5 Daily | 3 g Daily | 3 Daily | 4 g Daily | 4 mg Daily | 5 g Daily | 5 mg Daily | 5 Daily | 6 g Daily | 6 mg Daily | 8 mg Daily | 10 g Daily | 10 mg Daily | 15 g Daily | 20 g Daily | 20 mg Daily | 20 Daily | 40 g Daily | 43 g Daily | 50 g Daily | 50 mg Daily | 100 mg Daily | 100 Daily | 325 mg Daily | 500 mg Daily | 750 mg Daily | 1000 mg Daily | 1250 mg Daily | 1500 mg Daily | 2000 mg Daily | 2250 mg Daily | 2400 mg Daily | 2500 mg Daily | 2800 mg Daily | 3000 mg Daily | 3200 mg Daily | 5000 mg Daily | ||
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Duration
How long current patients have been taking Creatine or how long patients were taking Creatine before stopping.
Currently taking Creatine
Stopped taking Creatine
Patient Reported Evaluations
Results from 4 patient evaluations. See the overall results and all individual evaluations.
Efficacy (Effect based on reason taken)
| Moderate | 33% | 1 |
|---|---|---|
| Can't tell | 67% | 2 |
Slow my ALS progress
Side-effects (as an overall problem)
| Severe | 0% | 0 |
|---|---|---|
| Moderate | 0% | 0 |
| Mild | 0% | 0 |
| None | 100% | 4 |
Top reported side-effects include: Nausea
Summary results are based on 4 individual responses. For more information, see overall results for Adherence, Burden and Cost.
Individual Patient Reported Evaluations (2 of 4)
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- cajuntexusa
- Sex: M
- Mouth/throat: none
- Arms: moderate
- Chest: mild
- Legs: mild
- See profile
-
by cajuntexusa
Aug 19, 2008
- EfficacyModerate
- Side-effectsNone
- General health
- Advice/Tips
- I reduced this to once per day and missed some days. I was able to feel the difference (better) when I take it twice a day with OJ
- See full evaluation
-
1 helpful mark
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- spider
- Sex: M
- Mouth/throat: mild
- Arms: severe
- Chest: none
- Legs: moderate
- See profile
-
by spider
Jun 23, 2008
- EfficacyCan't tell
- Side-effectsNone
- Slow my ALS progress
- See full evaluation
-
0 helpful marks