PatientsLikeMe ™

ALS
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
ALS including PLS and PMA
Find out more about the PatientsLikeMe
ALS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Brand Names: Bi-Pap, Bi-PAP AVAPS, Bi-PAP Humidifier, Bi-Pap w/humidifier and oxygen concentrator, NIPPV other than Bi-PAP, ResMed VPAP III ST-A, Vivi 40, VPAP, VPAP III

What is Non-invasive Ventilator? NIPPV, also known as Bilevel Positive Airway Pressure (Bi-Pap) is an electronic breathing device used in the treatment of sleep apnoea, lung disease, and to treat respiratory weakness in ALS. Use of the device overnight improves quality of sleep, daytime sleepiness, and may improve thinking ability. Read more...Click to read more below


Reasons Taken

333 patients in the community are using or have used Non-invasive Ventilator.

Reason # Patients Percentage of patients
Other 111 33%
Slow my ALS progress 62 18%
General health 34 10%
disease-related symptoms 32 9%
Fatigue 32 9%
Breathing difficulty 31 9%
Insomnia 6 1%
Stiffness/spasticity 2 <1%
Excessive yawning 2 <1%
Dry mouth at night 2 <1%
Emotional lability 1 <1%
Shortness of breath 1 <1%
Endurance reduced (whole body) 1 <1%
Assistive communication 1 <1%
Support another treatment 1 <1%

Dosages

Based on the patients currently using Non-invasive Ventilator.

Top 10 (Show all)

All (Show Top 10)

  0 hr All the time (24/7) 0 hr As needed 0 As needed 0 hr Daily 0 Daily 0.5 hr As needed 1 hr As needed 3 hr As needed 4 hr As needed 6 hr As needed 8 hr All the time (24/7) 8 hr As needed 10 hr All the time (24/7) 10 hr As needed 16 hr As needed 24 hr All the time (24/7) 24 min All the time (24/7) 1 hr Daily 2 hr Daily 3 hr Daily 4 hr Daily 5 hr Daily 6 hr Daily 7 hr Daily 8 hr Daily 9 hr Daily 10 hr Daily 12 hr Daily 14 hr Daily 15 hr Daily 16 hr Daily 18.8 Daily 19 hr Daily 20 hr Daily 23 hr Daily 24 hr Daily 90 min Daily
  4 Number of Patients: 4 9 Number of Patients: 9 1 Number of Patients: 1 32 Number of Patients: 32 6 Number of Patients: 6 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 2 Number of Patients: 2 4 Number of Patients: 4 4 Number of Patients: 4 7 Number of Patients: 7 6 Number of Patients: 6 14 Number of Patients: 14 14 Number of Patients: 14 78 Number of Patients: 78 6 Number of Patients: 6 20 Number of Patients: 20 13 Number of Patients: 13 1 Number of Patients: 1 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 9 Number of Patients: 9 1 Number of Patients: 1  

Duration

How long current patients have been using Non-invasive Ventilator or how long patients were using Non-invasive Ventilator before stopping.

How Long Current Patients Have Been Using Non-invasive Ventilator

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
11
15
32
50
40

How Long Patients Used Non-invasive Ventilator Before Stopping

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
4
5
3
7
15
3
Why Patients Stopped Using Non-invasive Ventilator (multiple reasons could be selected)
Reason # Patients Percentage of patients
Other 21 55% Other: 55%
Not indicated 10 26% Not indicated: 26%
Did not seem to work 4 11% Did not seem to work: 11%
Course of treatment ended 4 11% Course of treatment ended: 11%
Doctor's advice 1 3% Doctor's advice: 3%

Patient Reported Evaluations

Results from 15 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 50% 3
Moderate 50% 3

Breathing difficulty

Side-effects (as an overall problem)

Severe 0% 0
Moderate 27% 4
Mild 20% 3
None 53% 8

Top reported side-effects include: dry mouth/throat, sore nose where the mask rests, bad headaches

Summary results are based on 15 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 15)

  • jmlasorsa
    Sex: F
    Mouth/throat: moderate
    Arms: moderate
    Chest: mild
    Legs: moderate
    See profile
  • jmlasorsa
  • by jmlasorsa
    Aug 18, 2008
  • EfficacyModerate
  • Side-effectsNone
  • Breathing difficulty

  • amma
    Sex: F
    Mouth/throat: none
    Arms: moderate
    Chest: moderate
    Legs: mild
    See profile
  • by amma
    Aug 25, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Fasciculations

See all evaluation results for Non-invasive Ventilator



Back to top