PatientsLikeMe ™

ALS
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
ALS including PLS and PMA
Find out more about the PatientsLikeMe
ALS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Generic Name: Non-invasive Ventilator

What is Bi-Pap w/humidifier and oxygen concentrator? NIPPV, also known as Bilevel Positive Airway Pressure (Bi-Pap) is an electronic breathing device used in the treatment of sleep apnoea, lung disease, and to treat respiratory weakness in ALS. Use of the device overnight improves quality of sleep, daytime sleepiness, and may improve thinking ability. Read more...Click to read more below

Contribute

Reasons Taken

11 patients in the community are using or have used Bi-Pap w/humidifier and oxygen concentrator.

Reason # Patients Percentage of patients
Other 6 54%
General health 2 18%
Breathing difficulty 1 9%
Fatigue 1 9%
Slow my ALS progress 1 9%

Dosages

Based on the patients currently using Bi-Pap w/humidifier and oxygen concentrator.

Top 10 (Show all)

All (Show Top 10)

  0 hr All the time (24/7) 0 hr As needed 0 As needed 0 hr Daily 0 Daily 0.5 hr As needed 1 hr As needed 3 hr As needed 4 hr As needed 6 hr As needed 8 hr All the time (24/7) 8 hr As needed 10 hr All the time (24/7) 10 hr As needed 16 hr As needed 24 hr All the time (24/7) 24 min All the time (24/7) 1 hr Daily 2 hr Daily 3 hr Daily 4 hr Daily 5 hr Daily 6 hr Daily 7 hr Daily 8 hr Daily 9 hr Daily 10 hr Daily 12 hr Daily 14 hr Daily 15 hr Daily 16 hr Daily 18.8 Daily 19 hr Daily 20 hr Daily 23 hr Daily 24 hr Daily 90 min Daily
  4 Number of Patients: 4 9 Number of Patients: 9 1 Number of Patients: 1 32 Number of Patients: 32 6 Number of Patients: 6 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 2 Number of Patients: 2 4 Number of Patients: 4 4 Number of Patients: 4 7 Number of Patients: 7 6 Number of Patients: 6 14 Number of Patients: 14 14 Number of Patients: 14 78 Number of Patients: 78 6 Number of Patients: 6 20 Number of Patients: 20 13 Number of Patients: 13 1 Number of Patients: 1 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 9 Number of Patients: 9 1 Number of Patients: 1  

Duration

How long current patients have been using Bi-Pap w/humidifier and oxygen concentrator or how long patients were using Bi-Pap w/humidifier and oxygen concentrator before stopping.

How Long Current Patients Have Been Using Bi-Pap w/humidifier and oxygen concentrator

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
1
0
1
1
2

How Long Patients Used Bi-Pap w/humidifier and oxygen concentrator Before Stopping

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
1
0
1
0
Why Patients Stopped Using Bi-Pap w/humidifier and oxygen concentrator (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 1 50% Did not seem to work: 50%
Other 1 50% Other: 50%

Patient Reported Evaluations

Results from 1 patient evaluation. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 50% 3
Moderate 50% 3

Breathing difficulty

Side-effects (as an overall problem)

Severe 0% 0
Moderate 27% 4
Mild 20% 3
None 53% 8

Top reported side-effects include:

Summary results are based on 1 individual response. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 1)

  • Alex M
    Sex: M
    Mouth/throat: severe
    Arms: severe
    Chest: moderate
    Legs: severe
  • Alex M
  • by Alex M
    Dec 16, 2008
  • EfficacyMajor
  • Side-effectsNone
  • Other

See all evaluation results for Bi-Pap w/humidifier and oxygen concentrator



Back to top