PatientsLikeMe ™

ALS
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
ALS including PLS and PMA
Find out more about the PatientsLikeMe
ALS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Brand Names: Alertec, Modiodal, Provigil

What is Modafinil? Modafinil is an anti-narcoleptic medication used to treat excessive sleepiness caused by sleep disorders such as narcolepsy or sleep apnea. It is sometimes used off-label to treat attention-deficit/hyperactivity disorder (ADHD); and treatment of fatigue in MS and other disorders.

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

31 patients in the community are taking or have taken Modafinil.

Reason # Patients Percentage of patients
Fatigue 23 74%
Other 3 9%
disease-related symptoms 2 6%
General health 1 3%
Slow my ALS progress 1 3%

Dosages

Based on the patients currently taking Modafinil.

  0 mg Daily 200 mg As needed 20 mg Daily 100 mg Daily 200 mg Daily 400 mg Daily
  1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 9 Number of Patients: 9 6 Number of Patients: 6 4 Number of Patients: 4  

Duration

How long current patients have been taking Modafinil or how long patients were taking Modafinil before stopping.

Currently taking Modafinil

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
1
0
5
8

Stopped taking Modafinil

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
2
0
0
0
0
Why Patients Stopped Taking Modafinil (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 3 43% Did not seem to work: 43%
Side effects too severe 2 29% Side effects too severe: 29%
Doctor's advice 1 14% Doctor's advice: 14%
Other 1 14% Other: 14%
Course of treatment ended 1 14% Course of treatment ended: 14%

Patient Reported Evaluations

Results from 3 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate 67% 2
Slight 33% 1

Fatigue

Side-effects (as an overall problem)

Severe 0% 0
Moderate 33% 1
Mild 33% 1
None 33% 1

Top reported side-effects include: Dry mouth and dry tongue, Jittery feeling, rapid heart rate

Summary results are based on 3 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 3)

  • dad_of_2
    Sex: M
    Mouth/throat: mild
    Arms: mild
    Chest: none
    Legs: moderate
  • dad_of_2
  • by dad_of_2
    Sep 22, 2008
  • EfficacyModerate
  • Side-effectsNone
  • Fatigue

See all evaluation results for Modafinil



Back to top