PatientsLikeMe ™

ALS
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
ALS including PLS and PMA
Find out more about the PatientsLikeMe
ALS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


What is Vitamin B? The B vitamins are eight water-soluble vitamins that play important roles in cell metabolism that they are chemically distinct and often coexist in the same foods. Supplements containing all eight are called Vitamin B complex. Individual B vitamin supplements are referred to by the specific name.


Reasons Taken

197 patients in the community are taking or have taken Vitamin B.

Reason # Patients Percentage of patients
General health 90 45%
Slow my ALS progress 53 26%
Other 12 6%
Fatigue 11 5%
Don't know 2 1%
disease-related symptoms 2 1%
Stiffness/spasticity 2 1%
Cramps 1 <1%
Fasciculations 1 <1%

Dosages

Based on the patients currently taking Vitamin B.

Top 10 (Show all)

All (Show Top 10)

  0 mcg Daily 0 mg Daily 0 Daily 0 intl units Monthly 1 mg Monthly 1 Monthly 1 mg Weekly 0.15 intl units Daily 1 mg Daily 1 Daily 1 mg Monthly 1.2 mg Daily 2 mcg Daily 2.5 mg Daily 3 mg Daily 3 Daily 5 mcg Daily 5 mg Daily 7.5 mg Daily 10 mg Daily 15 mcg Daily 20 mg Daily 25 mcg Daily 25 mg Daily 28 mg Daily 1000 mcg Monthly 40 mg Daily 45 mg Daily 50 mcg Daily 50 Daily 100 mcg Daily 100 mg Daily 100 Daily 1000 mg Weekly 200 mcg Daily 200 mg Daily 200 Daily 250 mcg Daily 250 mg Daily 500 mcg Daily 500 mg Daily 500 Daily 600 mcg Daily 1000 mg As needed 1000 mcg Daily 1000 mg Daily 1000 Daily 1010 mcg Daily 1100 mg Daily 1200 mcg Daily 1200 mg Daily 10000 mcg Weekly 1500 mcg Daily 1500 mg Daily 2000 mcg Daily 2500 mcg Daily 3000 mcg Daily 5000 mcg Daily 5000 Daily 6000 mcg Daily 10000 mg Daily 400000 mcg Daily
  1 Number of Patients: 1 4 Number of Patients: 4 24 Number of Patients: 24 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 2 Number of Patients: 2 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 5 Number of Patients: 5 2 Number of Patients: 2 2 Number of Patients: 2 7 Number of Patients: 7 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 3 Number of Patients: 3 5 Number of Patients: 5 11 Number of Patients: 11 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 25 Number of Patients: 25 1 Number of Patients: 1 5 Number of Patients: 5 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 9 Number of Patients: 9 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Vitamin B or how long patients were taking Vitamin B before stopping.

Currently taking Vitamin B

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
3
3
10
22
30
35

Stopped taking Vitamin B

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
2
10
5
6
6
Why Patients Stopped Taking Vitamin B (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 11 38% Did not seem to work: 38%
Other 11 38% Other: 38%
Doctor's advice 4 14% Doctor's advice: 14%
Not indicated 3 10% Not indicated: 10%
Personal research 2 7% Personal research: 7%
Expense 2 7% Expense: 7%
Course of treatment ended 2 7% Course of treatment ended: 7%

Patient Reported Evaluations

Results from 5 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate 50% 1
Can't tell 50% 1

General health

Side-effects (as an overall problem)

Severe 0% 0
Moderate 0% 0
Mild 0% 0
None 100% 5

Top reported side-effects include: eat all the time, some times I can't go to sleep so don't take b-12 too late in the day

Summary results are based on 5 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 5)

  • Rog
    Sex: M
    Mouth/throat: none
    Arms: moderate
    Chest: none
    Legs: none
  • Rog
  • by Rog
    Aug 23, 2008
  • EfficacySlight
  • Side-effectsNone
  • Slow my ALS progress
Advice/Tips
be very discerning over brand and type when it comes to B12

  • SheilaT
    Sex: F
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: mild
  • SheilaT
  • by SheilaT
    Oct 23, 2008
  • EfficacySlight
  • Side-effectsNone
  • Cramps
Advice/Tips
Helps a little bit but doesn't stop muscle cramps

See all evaluation results for Vitamin B



Back to top