PatientsLikeMe ™

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset

Bulbar	53	25%
Limb	156	74%
Breathing	3	1%

Time since Onset

Less than 2 yrs	78	36%
2-5 yrs	106	49%
More than 5 yrs	33	15%

Time since Diagnosis

Less than 2 yrs	133	63%
2-5 yrs	49	23%
More than 5 yrs	11	5%

Sex

Male	139	71%
Female	56	29%

Age range at Diagnosis

Under 40	41	21%
40-49	50	25%
50-59	59	30%
60-69	41	21%
70 or older	6	3%

Severity at Lithium start

FRS More than 36	54	34%
FRS 36-18	82	52%
FRS less than 18	10	6%

Lithium Blood Levels

More than 0.8 mmol/l	1	1%
0.8 - 0.4 mmol/l	62	33%
Less than 0.4 mmol/l	127	67%

Type of Lithium

Lithium Carbonate	196	90%
Lithium Orotate	5	2%
Lithium Sulfate	1	0%

Lithium Dose

300 mg/day or less	30	14%
301-450 mg/day	30	14%
451-600 mg/day	61	28%
601-900 mg/day	26	12%
More than 900 mg/day	2	1%

ALS Population

Type of Onset

Bulbar	363	21%
Limb	1326	77%
Breathing	40	2%

Time since Onset

Less than 2 yrs	335	19%
2-5 yrs	817	46%
More than 5 yrs	608	35%

Time since Diagnosis

Less than 2 yrs	689	41%
2-5 yrs	438	26%
More than 5 yrs	329	20%

Sex

Male	979	59%
Female	674	41%

Age range at Diagnosis

Under 40	285	19%
40-49	403	27%
50-59	468	31%
60-69	280	18%
70 or older	79	5%