PatientsLikeMe : Natalizumab Treatment Report

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Taking Natalizumab
402 Patients currently take Natalizumab
44 Patients stopped taking Natalizumab
jenj Sensation: None Overall: Mild Cognition: none Vision: none Speech: none Swallowing: mild Upper limb: moderate Walking: severe See profile jenj Tysabri, mg monthly since Jun 12, 2008
crysbo Sensation: Moderate Overall: Mild Cognition: moderate Vision: mild Speech: mild Swallowing: mild Upper limb: mild Walking: moderate See profile crysbo Tysabri, 300mg monthly since Jun 01, 2007
arkk Sensation: Severe Overall: Severe Cognition: moderate Vision: severe Speech: moderate Swallowing: moderate Upper limb: moderate Walking: moderate See profile arkk Tysabri, 300mg monthly since Oct 27, 2008

What is Natalizumab? Natalizumab is a monoclonal antibody given by infusion and used in the treatment of MS and Crohn's disease. It has been shown to slow progression and reduce relapses in MS. It is currently sold under the brand name Tysabri. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

446 patients in the community are taking or have taken Natalizumab.

Reason	# Patients	Percentage of patients
Slow my MS progress	364	81%
Other	25	5%
General health	8	1%
Stiffness/spasticity	6	1%
Fatigue	3	<1%
Don't know	2	<1%
disease-related symptoms	2	<1%
Imbalance when walking	1	<1%
Pain	1	<1%
Weakness in legs	1	<1%
Sensation	1	<1%
Mobility	1	<1%
transfering	1	<1%

Dosages

Based on the patients currently taking Natalizumab.

Top 10 (Show all)

All (Show Top 10)

0 g month	0 mg month	0 month	0 mg none	0.03333 g month	0.03333 mg month	0.03333 month	0.13332 mg month	0.16665 mg month	0.49995 mg month	0.6666 mg month	0.83325 mg month	0.9999 mg month	1.6665 mg month	3.333 mg month	6.666 mg month	9.999 mg month	33.33 mg month	300 mg day
1	171	26	1	1	1	5	1	1	1	2	1	2	1	3	4	156	1	7

Duration

How long current patients have been taking Natalizumab or how long patients were taking Natalizumab before stopping.

Currently taking Natalizumab

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
11	17	45	88	78	28

Stopped taking Natalizumab

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
6	11	11	9	5	1

Why Patients Stopped Taking Natalizumab (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Other	17	39%
Doctor's advice	16	36%
Side effects too severe	16	36%
Did not seem to work	11	25%
Course of treatment ended	2	5%
Expense	1	2%

Patient Reported Evaluations

Results from 33 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	27%	8
Moderate	23%	7
Slight	17%	5
None	10%	3
Can't tell	23%	7

Slow my MS progress

Side-effects (as an overall problem)

Severe	6%	2
Moderate	3%	1
Mild	45%	15
None	45%	15

Top reported side-effects include: tiredness, mild headache, Headaches

Summary results are based on 33 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 33)

LadyMac

Sensation: Mild

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: mild

See profile
by LadyMac
Aug 18, 2008

EfficacyCan't tell
Side-effectsNone

Slow my MS progress

Advice/Tips: Just be positive about the drug, that it's for you and what you need and want. Positive thinking can help more then one thinks. I'm looking forward to my next infusion next month. August '08 was my first infusion and I was happy with the TOUCH program. Was a very relaxing experience.

See full evaluation
1 helpful mark

cureseeker

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: none

Walking: moderate

See profile
by cureseeker
Aug 18, 2008