PatientsLikeMe : ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
PALS Data Quality: 2 stars ALS: 3 yrs Bi-Pap Wheelchair Feeding tube Mouth/throat: none Arms: severe Chest: moderate Legs: severe	Dennis Mandvill	Male, 47 years	United StatesOKTulsa Tulsa, OK	arms onset: 07/05 Dx: 02/06 Type: ALS/Motor Neuron Disease
lucrecia Data Quality: 1 star ALS: 1 yr Feeding tube Mouth/throat: severe Arms: mild Chest: mild Legs: mild See profile	Leslie de Palomares	Female, 64 years	VenezuelaEstado MirandaCaracas Caracas, Estado Miranda	bulbar onset: 02/07 Dx: 05/07 Type: ALS/Motor Neuron Disease
Rick Stapp Data Quality: 2 stars ALS: 1 yr Mouth/throat: mild Arms: moderate Chest: mild Legs: moderate See profile	Ricky Stapp	Male, 41 years	United StatesINIndianapolis Indianapolis, IN	arms onset: 01/07 Dx: 12/07 Type: ALS/Motor Neuron Disease
froghollow Data Quality: 0 stars ALS: 2 yrs Mouth/throat: mild Arms: moderate Chest: none Legs: moderate See profile	Michael Oyer			arms onset: 09/06 Dx: 07/07 Type: ALS/Motor Neuron Disease
MILLPJM Data Quality: 2 stars ALS: 1 yr Mouth/throat: mild Arms: none Chest: none Legs: none See profile	Paul Miller	Male, 62 years	United StatesCTSIMSBURY SIMSBURY, CT	arms onset: 09/07 Dx: 07/08 Type: ALS/Motor Neuron Disease
PJM Data Quality: 0 stars ALS: ? yrs Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported See profile	Paul Miller			Type: ALS/Motor Neuron Disease
greyhead Data Quality: 2 stars ALS: 2 yrs Mouth/throat: mild Arms: moderate Chest: none Legs: mild See profile	Brad Richardson	Male, 42 years	United StatesINCambridge City Cambridge City, IN	arms onset: 06/06 Dx: 11/06 Type: ALS/Motor Neuron Disease
PALS Data Quality: 1 star ALS: < 1 yr Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported	Mike Sullivan	Male, 28 years	United StatesMTButte Butte, MT	bulbar onset: 04/08 Dx: 10/08 Type: ALS/Motor Neuron Disease
lookingup2 Data Quality: 1 star ALS: 3 yrs Bi-Pap Mouth/throat: none Arms: moderate Chest: moderate Legs: moderate See profile	Warren James			legs onset: 04/05 Dx: 02/07 Type: ALS/Motor Neuron Disease
Adita Data Quality: 0 stars ALS: 2 yrs Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported See profile	Ada Sojo	Female, 70 years	VenezuelaAraguaCaracas Caracas, Aragua	arms onset: 02/06 Dx: 08/07 Type: ALS/Motor Neuron Disease
Zippo Data Quality: 1 star PLS: 4 yrs Bi-Pap Mouth/throat: mild Arms: mild Chest: mild Legs: moderate Type: Upper Motor Neuron See profile	Laura Urbiha	Female, 48 years	United StatesMIFarmington Hills Farmington Hills, MI	arms onset: 10/04 Dx: 03/06 Type: PLS/Primary Lateral Sclerosis
jstsb58/fla Data Quality: 2 stars ALS: < 1 yr Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile	Jeff Tysenn	Male, 50 years	United StatesFLSatellite Beach Satellite Beach, FL	bulbar onset: 04/08 Dx: 08/08 Type: ALS/Motor Neuron Disease
puffingbilly Data Quality: 2 stars ALS: 2 yrs Bi-Pap Mouth/throat: none Arms: mild Chest: moderate Legs: moderate See profile	Graham Stickland	Male, 64 years	United KingdomDevonNewton Abbot Newton Abbot, Devon	legs onset: 07/06 Dx: 09/08 Type: ALS/Motor Neuron Disease
meso Data Quality: 0 stars ALS: ? yrs Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported See profile	Maissara Said			Type: ALS/Motor Neuron Disease
busy bee Data Quality: 2 stars ALS: 2 yrs Mouth/throat: mild Arms: moderate Chest: mild Legs: moderate See profile	Marlene Duvenage	Female, 51 years	South AfricaGautengJohannesburg Johannesburg, Gauteng	arms onset: 10/06 Dx: 02/08 Type: ALS/Motor Neuron Disease
Kaneke Data Quality: 0 stars ALS: ? yrs Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported See profile	Karen Neves Kern			Type: ALS/Motor Neuron Disease
PALS Data Quality: 1 star ALS: 1 yr Mouth/throat: none Arms: mild Chest: none Legs: none	Kevin Jordan	Male, 37 years	South AfricaGuatengJohannesburg Johannesburg, Guateng	arms onset: 08/07 Dx: 08/08 Type: ALS/Motor Neuron Disease
elabeauty Data Quality: 1 star ALS: 4 yrs Bi-Pap Mouth/throat: none Arms: mild Chest: mild Legs: moderate See profile	Chantal Dias	Female, 57 years	Portugal Portugal	legs onset: 06/04 Dx: 07/07 Type: ALS/Motor Neuron Disease
Tom n WA Data Quality: 2 stars ALS: 20 yrs Mouth/throat: none Arms: mild Chest: none Legs: moderate See profile	William Rogers	Male, 48 years	United StatesWAChehalis Chehalis, WA	legs onset: 01/88 Dx: 05/08 Type: ALS/Motor Neuron Disease
Coolpete Data Quality: 2 stars ALS: 2 yrs Wheelchair Mouth/throat: none Arms: severe Chest: none Legs: moderate See profile	Peter Kalivati	Male, 49 years	New ZealandWellingtonUpper Hutt Upper Hutt, Wellington	arms onset: 04/06 Dx: 12/06 Type: ALS/Motor Neuron Disease

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