The research team brings a variety of expertise to the design of PatientsLikeMe and the study of the data collected here. Our team includes psychologists, analysts and health services and medical researchers.
C Brownstein, MPH, PhD
Research Scientist
Jeana Frost, PhD
Research Scientist
James Heywood
Co-Founder, Chairman
Michael P. Massagli, PhD
Research Scientist
Sally Okun
Health Data Integrity Manager
Paul Wicks, PhD
Research Scientist
Ongoing
View FRS scores before and after starting lithium, easily compare individual dosages and blood levels, and filter results by a rich set of patient characteristics.
Avanir is a biopharmaceutical company focused on developing and commercializing novel therapies for central nervous system disorders with high unmet medical need.
Novartis Pharmaceuticals Corporation wants to improve patients' lives by providing customers with innovative science and differentiated healthcare solutions delivered by diverse and engaged talent with integrity, passion and focus on performance.
August 20, 2008
A study examining the prevalence of non-motor symptoms among Young-Onset Parkinson's Disease patients (with an onset before 40 years of age) and patients with "classic" Parkinson's.
May 27, 2008
"This project investigates how patients react to the shared use of what is often considered private information: personal health data."
February 12, 2008
A study of our members found that doctors rarely warn patients and caregivers about known psychological and cognitive consequences of ALS.
January 5, 2008
A narrated slideshow by Paul Wicks featuring a brief history of PatientsLikeMe, a tour of the site, and results from research studies carried out in 2007.
December 20, 2007
In response to a journal article and conversations in the forum, PatientsLikeMe carried out a unique study that found that painful, uncontrollable “excessive yawning” was relatively common in the bulbar-onset form of ALS. The results were published in the journal Acta Psychiatrica Scandinavica in 2007.
Where do you fit in? To help you get a better understanding of where you are relative to the rest of the coummunity, we periodically generate reports that will give you an overview of who is here; where they’re from, their demographics, and their experience of their condition. Take a look and connect with other “patients like you!”
March 17, 2008
January 9, 2008
